Washington state informational and networking events for families with children with special health needs
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Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6) is a 10-part seminar series that builds on an international study, completed in 2020, designed to highlight key clinical research questions for the care of children with neurodisability and medical complexity.
The series is led by complex care pediatricians Dr. Eyal Cohen and Dr. Catherine Diskin from the Hospital for Sick Children (SickKids) in Toronto, Canada, and Dr. Rishi Agrawal from Lurie Children’s Hospital of Chicago, as well as Family Voices representatives Nora Wells, Cara Coleman, and Kate Robinson.
Each one-hour seminar will be hosted on Zoom and will include a panel of national experts, both clinical and caregiver. Seminars will begin with an overview of the topic and a conversation on shared decision making in pediatric complex care. The goal is to build a community of practice. Attendees are encouraged to ask questions, share insights, and engage with the panel.
Family caregivers, youth, and friends of children with medical complexity (CMC) are welcome to join along with health care professionals, researchers, policy makers, and anyone invested in advancing clinical care in CMC.
The C6 seminar series is funded through a grant from the Lucile Packard Foundation for Children’s Health.
The National Organization for Rare Disorders (NORD®) is pleased to announce a collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series discussing the role that health care providers play in addressing health inequity in the rare disease community. The series will explore underlying issues that lead to inequities and encourage participants to evaluate their interactions with members of the rare disease community from marginalized groups.
Join us for the first part in the series on December 9 for a discussion about the disproportionate impact of rare disorders on communities of color, including barriers to access for early and accurate diagnosis, affordable health care, referrals to specialists, provision of educational and support services, and participation in clinical trials. This webinar will be moderated by Dr. Georges Benjamin, Executive Director of the American Public Health Association, and feature a primary health care physician, a genetic counselor, and a rare disease patient advocate.
This webinar is intended for all members of the rare disease community, including those that care for and advance research on behalf of those living with a rare disease.
Monthly on the 2nd Friday of each month at 7 PM.
A group for parents and caregivers of individuals with Down Syndrome.
Grab your dinner, a tasty beverage, and your phone, tablet, or computer – and join us online for social time together!
This group is about social connection, building community, emotional support, laughter, sharing resources, and just having a safe place to talk with other people who get it.
What to Expect:
- Good conversation
- Building community
- Connecting to other parents
- Sharing community resources
Questions:
Doreen VanderVort : (253)565-2266 ext 107
PAVE Pierce County Programs: P2P@wapave.org
Sharing Down Syndrome in Pierce County – SDSPC@wapave.org
Join the Kitsap County Council for Human Rights for the 31st Annual Conference for Human Rights that takes place virtually from 9 a.m. to 3 p.m. Saturday, December 11. The conference is free but pre-registration is required prior to the day of the event. There is no need to sign up for specific conference sessions in advance. The links to the conference schedule, including session descriptions and presenter information, and to register are below.
This year’s event centers around “Calling the Circle for Restorative Justice,” and looks at how restorative circles are used to build and restore relationships through equal opportunity, sharing and listening, and by providing every individual the opportunity to speak and be heard.
Multiple workshops and other sessions will also be offered on topics related to restorative practices and initiatives, compassionate listening, using data to promote equity, fostering a recovery friendly region, impacts of climate change on vulnerable populations and examining racism from public health and historical perspectives. The annual Linda Gabriel Awards will also be announced, recognizing youth, individuals and organizations in Kitsap County who have made significant contributions to human rights.
Questions? Contact Rebecca Pirtle in the Commissioners’ Office at rpirtle@co.kitsap.wa.us.
A virtual series for parents and caregivers of loved ones with intellectual and developmental disabilities.
The second Sunday of each month, 10-11:30 am via Zoom
Sept. 12th – Special Education and Recovery Services
Oct. 10th – Supported Decision Making
Nov. 14th – How to Renew Guardianship
Dec. 12th – Overview of Housing Models
To join: https://us02web.zoom.us/j/86135234550
No RSVP is required to attend. Contact RNemhauser@arcofkingcounty.org or 206-829-7046 for questions, language interpretation, or to request accommodations.
Square Pegs has a new group just for autistic and neurodivergent parents. They meet the 2nd Sunday of each month here at The Arc from 10am-12pm. If you have questions they can contact Jen.St.Cyr@gmail.com or Gina@bunster.org
The PAVE PTI Special Education trainings are opportunities for parents, caregivers, and professionals to learn how students receive their special education services. From 2pm – 3pm will be the training topic.
The IEP clinic will go from 3pm – 4pm that will allow individuals to bring your students IEP, Evaluation, or 504 plan to the clinic and asked questions/answers.
Join Us for the Brunch & Learn ” Need to Know” Webinar Series!
Each webinar is 90-minutes and designed to provide information and resources to military EFMP families to help them access and navigate the educational and medical services.
Registration is free and open to all service members!
Dates and Topics:
November 19, 2021: TRICARE, ECHO, & ABA
December 17, 2021: IEP SMART Goals
January 28, 2022: 504 Plans/Accommodations
February 25, 2022: Student Led IEP
March 25, 2022: Supported Decision Making & Person Centered Planning
April 29, 2022: Financial Planning for the Future
May 27, 2022: Planning a PCS Move
Square Pegs has a new group just for autistic and neurodivergent parents. They meet the 2nd Sunday of each month here at The Arc from 10am-12pm. If you have questions they can contact Jen.St.Cyr@gmail.com or Gina@bunster.org
Monthly on the 2nd Friday of each month at 7 PM.
A group for parents and caregivers of individuals with Down Syndrome.
Grab your dinner, a tasty beverage, and your phone, tablet, or computer – and join us online for social time together!
This group is about social connection, building community, emotional support, laughter, sharing resources, and just having a safe place to talk with other people who get it.
What to Expect:
- Good conversation
- Building community
- Connecting to other parents
- Sharing community resources
Questions:
Doreen VanderVort : (253)565-2266 ext 107
PAVE Pierce County Programs: P2P@wapave.org
Sharing Down Syndrome in Pierce County – SDSPC@wapave.org