Family Support Information
There are many family supports that exist throughout the state to aid, educate, and create a community for families that have a member that has complex health care needs.
Peer and Support groups
Dads M.O.V.E. seeks to provide every parent/caregiver (especially dads) with the tools, support, and training needed to be fully engaged in the recovery of their children. Hosts a bi-weekly Dad’s Support meeting.
Family Support Programs
Lifespan Respite Washington (LRW)
Lifespan Respite offers grants or vouchers up to $1,000 per household. Priority is given to eligible families who have not previously received a voucher and those providing care to people who may have a Traumatic Brain Injury (TBI) and those whom have a child that is eligible but not receiving services from the Developmental Disabilities Administration(DDA and those providing care to adults with other issues living on the eastside or westside of the state. Click to see eligibility for a grant and to apply.)
Online Family Resources
Keep Connected – Ideas, activities, and experiences to help build strong family relationships
Making Friends Where You Live – A Toolkit for Building Friendships Between People With and Without Disabilities
Mommies of Miracles – Support group for mothers of children who have medical complexities, life-limiting conditions, or developmental disabilities
Parent Help 123 – Information about accessing benefits, child development, and special needs
The Arc of Washington – Provides resources for people with intellectual and developmental disabilities and their families, including the statewide Parent 2 Parent program.
Watch Me Grow in Washington State – Get more health and safety information for your child
Articles on Family Support and Self-Care
Climbing the Emotional Caregiving Mountain
A mother’s reflection on raising a child with complex health care needs.
Self-Care is Critical for Caregivers with Unique Challenges
A helpful article from the PAVE website written from a parents’ perspective on how to practice self-care as a caregiver.
Self-Care for Caregivers: How Special Needs Families Recharge
An article on self-care for caregivers written by Angela Nelson, the executive director of Family and Clinical Services, Rethink.
What if My Child is Not Capable of Representing Him or Herself? Guardianship May be Needed
Information on Guardianship, Conservatorship, and the Age of Majority