Dan Thompson Account Survey – Make Your Voice Heard!

Seeking your input! DDA is asking for your participation to provide input on future awards from the Dan Thompson Memorial Developmental Disabilities Community Services Account. We want to hear from you about what the process should look like and what type of projects should be funded. Please complete the survey below by close of business Oct. 13.

There is approximately $5 million dollars in the Dan Thompson Account for new applications to be spent by June 30, 2025.

RCW 71A.20.170 (6) states “Expenditures from the account must supplement, and may not replace, supplant, or reduce current state expenditure levels for supports and services in the community setting for eligible persons with developmental disabilities.” This means that grant awards cannot pay for services covered by DDA Home and Community Based Services waivers or Medicaid State Plan services.

Thank you for your input. The survey results will influence the design of the next round of applications for Dan Thompson Account funding.

Take the survey here

Youth and Parents Needed for Mobile Study to Support Mental Health

Who’s Eligible?

  • Youth (15-21 y/o) and their Parents/Guardians
  • Both fluent in English
  • Both have a smartphone
  • Living in same household 5 days/week
  • Youth Involved with Juvenile Justice (probation, re-entry services, etc.)
  • Youth has been depressed, suicidal, or engaged in self-harm

What’s Involved?

  • Youth + Parent/Legal Guardian will use a mobile phone app together for 4 months
  • Participate in 4 virtual meetings over 4 months

For more information, view the flyer: RCT Flyer

Advisory Committee Opportunity from the CYSHCNet Research Network

We’re interested in hearing from children and youth with special health care needs(CYSHCN) and anyone who supports them.

Whether you’re a young adult with special health care needs, a caregiver, a clinician, or you’re employed in the CYSHCN field, we want to hear from you!  Apply to participate in our Advisory Committee to help our researchers create studies that improve the health caresystem for CYSHCN and their families.

What you need to know:

  • Quarterly Zoom meetings with total time commitment of ~12 hours/year.
  • Lived experience partners (i.e., those who are or care for someone with a special health care need) receive $600/year for participating.
  • Clinicians and those otherwise employed in the CYSHCN field are invited to participate as volunteers.
  • Experience in one of the following areas is helpful but not required: caregiving, dissemination, research, policy work, health care financing, program development, clinical care for CYSHCN, legal skills, public relations, or communications.

Deadline for applications is August 10, 2023.

Learn more atcyshcnet.org/advisory-committee

CYSHCNET Advisory Committee Flier

Input Needed for Crisis Intervention Systems for Youth with IDD

The National Association for the Dually Diagnosed has partnered with the National Association of State Mental Health Program Directors to conduct a study investigating services provided to teens and young adults who have intellectual/developmental disabilities and co-occurring mental health conditions (dual diagnosis).

The goal of this study is to identify best practices and improvements needed to ensure responsive, individualized and effective treatment and support for teens and youth with a dual diagnosis who are experiencing a crisis. NADD will utilize the information obtained from this study to identify strategies that build capacity within communities to better meet the needs of teens and youth who have intellectual/developmental disabilities and mental health conditions.

We are seeking volunteers to complete a short survey and participate in a follow-up phone or video interview.

Volunteer requirements:

  • Must be a behavioral health/mental health professional, parent/advocate, educator, emergency services personnel or first responder.
  • Must reside within the United States.
  • Must be 18 years of age or older.
  • Must work with or have provided services to teens and youth with intellectual//developmental disabilities.
  • Must be able to read and understand English.

Additional information:

Survey, phone interviews and video sessions will be completed through Monday, July 17, 2023.

Participation is voluntary and all responses will be kept confidential. You may exit the online survey or interview at any time. Before you participate, you will be asked to electronically sign an adult consent form. To protect your privacy, no names or any personally identifiable information will be collected outside of coordinating your phone interview or video session.

Please click here to take the survey.

Study Needs Participants: The Health of Parents of Children Diagnosed with Autism

Rutgers University is conducting a study on the health of parents of children diagnosed with autism.  The purpose of this study is to explore how levels of stress and self-compassion influence parental mental and physical health. They are planning to recruit 280 participants in this survey.

Who is eligible to participate?

Adult parents or primary caregivers of a child diagnosed with autism spectrum disorder
Ability to read and respond to survey questions in English

Participants will be asked to complete a 15-20 minute, online survey about their health. Responses will be confidential. This study will inform the development of interventions to improve the mental and physical
health of parents and caregivers of children diagnosed with autism.

Moving ForWArd: Join us and become an Apple Health Ambassador today!

The Health Care Authority (HCA) needs you! In preparation for the end of the public health emergency (PHE), we are looking for volunteers to share Apple Health (Medicaid) information with their community. Let’s help keep Washingtonians covered!

Get involved!

Many times, people from our community have difficulties accessing Apple Health programs and services due to language barriers, transportation, lack of engagement, etc. We are looking for volunteers from organizations such as schools, food banks, churches, and community advocates to get involved and become an Apple Health Ambassador.

If you or someone you know would like to participate contact AHEligCovid19@hca.wa.gov.

Resources

HCA will continue to share updates as new information becomes available. Follow us on social media for updates on Apple Health. For more information about the Public Health Emergency visit hca.wa.gov/phe.

Opportunity for Families: Promoting Equitable Access to Language Services for Families of CYSHCN

Family Voices is recruiting 8 diverse multilingual people to participate in the project advisory committee (PAC) for our new project to Promote Equitable Access to Language Services (PEALS) for families of CYSHCN. The PAC will lead the project by identifying community needs, and reviewing and testing materials to be sure that they work well for English Language Learners.

The PEALS project will improve the quality and use of language access services in the healthcare setting for families with limited English proficiency.

Recruitment Criteria

Eligible participants will be:

  • Diverse youth or family members of CYSHCN with limited English proficiency (LEP) who speak more than one language, (Chinese, Arabic, Spanish etc.) or
  • Allied health workers or health care providers who speak more than one language, (Chinese, Arabic, Spanish etc.) or
  • Community health workers who speak more than one language (Chinese, Arabic, Spanish etc.)

Compensation

  • PAC members receive $300 for each meeting they participate in.

If you are interested in participating, please complete the application form by November 30, 2022.  

The goal of this project is to improve the quality and use of language access services in the health care setting for families with Limited English Proficiency. Family Voices and our partner at the American Academy of Pediatrics will work alongside families with lived experience to develop educational tools and strategies for families, community health workers, and health care providers to improve the way they use language access services.
If this project interests you, please complete the application below to be considered as a member of the Project Advisory Committee (PAC). This committee will help identify community needs and review and test materials to be sure that they work well for English Language Learners.

Strengthening Early Learning Transitions

We know that young children do better when they enter preschool or kindergarten feeling welcomed and excited. Families, schools, and early learning programs must work together to provide the best pathway for every child.  You can help to strengthen these transitions in Washington by sharing your story with us. We are asking families to think about the following three questions and talk about them with us in a listening session or interview.  1. What are your hopes and dreams for your child as they enter preschool or kindergarten? 2. What are your fears and challenges? 3. What does success look like for your child?  Please complete the following information and a Zoom link will be sent to you prior to the event.  A $25 gift card will be sent to participants who attend the event.

We know that young children do better when they enter preschool or kindergarten feeling
welcomed and excited. Families, schools, and early learning programs must work together to
provide the best pathway for every child.
 
You can help to strengthen these transitions in Washington by sharing your story with us. We
are asking families to think about the following three questions and talk about them with us in
a listening session or interview.
 
1. What are your hopes and dreams for your child as they enter preschool or
kindergarten?
2. What are your fears and challenges?
3. What does success look like for your child?
Please complete the following information and a Zoom link will be sent to you prior to the event.
A $25 gift card will be sent to participants who attend the event.

COVID Shot Focus Group for Young Adults with Developmental Disabilities

Family Voices is holding a focus group for the American Academy of Pediatrics (AAP). The group is for young adults, 18 to 26 years old, with a developmental disability. The purpose of the group is to learn:

·       What you know about COVID shots
·       What else you want to learn
·       The best way for you to learn about the shots

We will be inviting young adults to participate. If you want to be considered for the group, fill out this survey. The group will meet by Zoom. If you are invited to the group and you join, we will give you $125 to thank you.

Family Voices will write a report for the AAP to share what you tell us. We will not use your name or any other information about you. No one will know the comments you made.